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Charity
Courtney Cox with Luke Langhor
at the Old Navy Rock & EBowl event at Pinz
Courtney Cox with Luke Langhor

Luke The Brave

 

Luke the brave is of and for Luke-O. He is a source of inspiration and love for all who have met him. Luke-O is smart, wise and has a smile that can melt any heart. Luke-O also suffers from Epidermolysis Bullosa, a genetic disease that you probably have never heard of. It is one of many rare genetic diseases that gets lost in the shadow of higher profile diseases that often receive the majority of funding and media spotlight. It is, however, no less devastating and cruel. Over time this website will grow to include information on how you can help along with updated information as it relates to Epidermolysis Bullosa and Luke-O's life.


Epidermolysis Bullosa (EB) Awareness Celebrities Chip In




BRINGING CARSON HOME

Having trouble viewing the story? Click here to open page in a new browser window.

 

Long-shot stem-cell treatment gives two brothers a future
Two Brothers Have a Future


Thank you everyone who participated in this charity event in an effort to find a cure for EB

Celebration On The Pier - October 2007
Click Here To See Video
Luke, Daisy and Sutter with Adam Sandler

Luke, Daisy and Sutter with Adam Sandler

Luke, Daisy and Sutter with Courtney Cox and David Arquette

Luke, Daisy and Sutter with Courtney Cox and David Arquette

Luke, Daisy and Sutter with Terri Seymour

Luke, Daisy and Sutter with Terri Seymour

Luke on the red carpet!
Luke on the red carpet!

Read More:

http://www.usatoday.com/news/health/2007-10-31-experiment-transplant_N.htm

To learn more about Epidermolysis Bullosa and how you can help
please visit DEBRA.ORG, MAKE A WISH Foundation , or EB Kids

DEBRA
Make A Wish Foundation
EBKids.org
 
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